Hello Everyone,
I haven't posted for a few days because I'm in St. Louis for training until tomorrow. I have been checking my emails, though, and today got a response from a woman with the Living With Trisomy 13 website. Last week I was on it and noticed that there is a "Prenatal Family Album" section. I emailed my story and they have since created an album for Ethan. Here is the link if you'd like to visit:
http://livingwithtrisomy13.org/AlbumEthan.htm
It's basically a summary of our story to inform others who face a similar diagnosis. I'm hoping to find a better picture to use that either has Keith and I together, or an ultrasound if I can get it scanned!
Not much else new going on other than that. I'm just ready to get home again and see Keith and the doggies! I've been gone since Sunday and I'm tired of sleeping in a hotel room! I hope you're all having a good week and I will post more updates soon.
Love,
Ashley
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ashley- you rock and roll.. that album is great... i hope you can get more pictures in it soon. :) (we all want to see more too!)
ReplyDeleteit is so awesome that you're connecting with other mommies/families... i know it's great to talk with people who have been in similar situations and it's so great that you can actually pass on those relationships with other people you meet (through this blog, or the website) as well.
Ashley,
ReplyDeleteMy name is Katie White and I am mommy to Henry David born November 8, 2009. Henry had full trisomy 13 just like your sweet baby Ethan. Even though Henry only lived for six minutes, I have never regretted our decision to carry him for as long as I could. I am so grateful to have been able to hold him and see him face to face. I am here for you! My blog is: http://cheesymom-katie.blogspot.com and my email is kakiefield@cs.com. The Living with Trisomy 13 website is phenomenal and was a great source for me. If you have any questions about future plans you should make, please feel free to contact me. Also, I met another mother through that site named Lauren. Her baby Jonathan was born a month to the date before Henry and her blog is: http://jonathansbabyjournal.blogspot.com. She has been a great source of comfort to me as well. Praying for you and Ethan. In Christ, Katie White